Kate went in yesterday for a follow-up with her neurologist. We had a great appointment. For some reason, despite all she has gone through, Kate loves going to the doctor, especially to Children's. I am so thankful for that. Our appointment was at 4, and she was looking forward to it all day. What a sweet girl.
We had a great appointment, and all of my questions were answered. Her neurologist, Dr. Peter, is always amazed at how great and healthy she looks, and how verbal and independent she is. Kate was awesome and did everything that was asked of her happily.
We talked about all of the episodes she had since we last saw Dr. Peter. She had 4 in the last 6 months, 3 of which were in a 5 week period. She had one episode that lasted 2 days, then had 4 months episode free, and then had 3 within 5 weeks (the most recent being last Tuesday). Her episodes are short now that she is on Periactin, so those 4 episodes means a total of 5 mornings vomiting (in the past 6 months) and a total of between 15-20 hours of vomiting, just in those 5 mornings (and this is almost constant vomiting). All of her episodes are over by 7 or 8am.
We talked about what would happen at the clinic she is going to in December. This is a neuro-metabolic clinic, where 2 doctors (one neurologist and one metabolic specialist) will look at Kate and her lab work and determine if she has a metabolic disorder. Dr. Peter told me that "they are geniuses at metabolic disorders", so I feel very good about seeing them. Going to this clinic is our last test before Kate is officially "diagnosed" with Cyclic Vomiting. I will be very happy when we are out of the testing phase and can move on with a diagnosis. If the doctors at the clinic look at her labs and think that it is a metabolic disorder, then we will proceed from there. But if they look at it and think that it is not, then Kate has CVS. So, we are not quite there yet, but we are close to finally figuring this thing out and also ruling out all the other causes of this vomiting. CVS is only diagnosed after they rule everything else out, hence all of the testing.
We also talked about Kate's meds, and whether or not we should still use them "as-needed", like we are now, or if we should give them to her everyday and see if her episodes dramatically decrease or even stop all together. We decided to continue to use them as needed, and see how the next month or two goes. I agreed to call Dr. Peter if Kate's episodes continue to be as frequent as they have been the past month, and we'll see what happens at the clinic as well.
Overall, we had a great visit, Kate looks wonderful and somehow managed to gain 3 1/2 pounds in the last 6 months! Aside from this bizarre disorder, Kate is doing great, and we are so thankful for that.
We are also so thankful that our baby girl is turning THREE next week!! How is that even possible??
Thank you to all that are praying for us and our little girl!