Yesterday Kate had her follow-up from her visit to Children's in October. We were seeing a different doctor this time, since we scheduled her follow-up to be at Children's Boston North, which is their North Shore hospital (and is amazingly only 10 minutes from our house!)
Honestly, I was not terribly impressed by Children's Boston when we where there. Maybe my expectations were too high, but it is one of the best children's hospitals in the world. When we were there, we felt very rushed, they did Kate's neurological exam and told us they thought it was Cyclic Vomiting Syndrome and said "Keep and eye on her" and sent us on our way. That was it.
At Boston Children's North, I could feel a difference right away. Obviously, it was WAY less crowded, since it wasn't their main hospital. It was very clean and their staff were all so friendly and helpful. Their waiting room was kid friendly with 2 TVs playing PBS kids, an awesome aquarium, kids books and a little kids table and chairs (which is more than I can say about the Boston waiting room). Kate and Jonah had a blast while we waited for Kate's appointment. After just a few minutes, the nurse came out and was very nice even though Kate started screaming because she didn't want to take off her shoes when it was time to get her weight.
The exam room had a cool Little Tikes pirate ship that kept Jonah and Kate busy throughout the entire appointment. The doctor (Dr. R.) came and started asking us questions about Kate and everything that has been going on with her. It was reassuring to talk to him for so long (he met with us for about 45 minutes!), and to hear from him that he doesn't think it is anything too serious, but he does want to figure out what is going on. He also told us that there are other things that could be going on, instead of it being the cyclic vomiting, and he wants to get tests done to rule those things out. I am so happy that is working to figure this out instead of just guessing at what it is and sending us on our way.
He said that Kate looked very healthy and she passed her neurological exam. It doesn't appear to be anything too major, but he seemed sort of intrigued and confused by her case, so he wants to figure out what is causing Kate's vomiting.
He wants Kate to be seen by a gastroenterologist, and was surprised that no other doctors had brought that up. Kate already has that appointment set for Monday. If they find anything as the cause of her vomiting, then we will obviously be working with them from now on. She would probably be put on medication that could take care of the whole thing, which would be great. If they find that her tests are negative, then we will be seeing Dr. R again 2 months from now. He said that he wants to see Kate again and hear how those 2 months went and what her episodes looked like. He said that he will probably set up an MRI to get a look at her brain and see if they can see/find anything.
He really doesn't think it is anything like a tumor, because this has been happening since before Kate was 1 and if it were a tumor it would not be so long between episodes and they would be more severe. So we aren't really worried about that being the cause of Kate's vomiting, which is a relief! I think that I would actually feel a lot better if they did do an MRI, just so that we don't have to wonder if there is anything going on in her brain.
I was much happier with our visit yesterday and finally feel like we might be able to figure out just what is going on with our little girl. I am so thankful that Children's North is so close to our house and that we had such a good experience there.
Kate has been such a trooper through all of this and hopefully we can figure this out for her. We are back to Children's North on Monday afternoon for her next appointment and I'll let you know what we find out!